Our Leadership

The mandate of this committee is to review all submitted research protocols for approval as a CAPRI project. This includes relevance to pediatric rheumatology, alignment with the objectives and guidelines of CAPRI, possible impact on existing protocols, feasibility with respect to both budget and resources, possible duplication of existing protocols, and plans for authorship for the involved CAPRI members. CAPRI projects must involve at least one centre in Canada and must have at least one CAPRI member as an investigator.

The CAPRI Registry Committee oversees all activities of the CAPRI Juvenile Idiopathic Arthritis (JIA) registry. The goal of the CAPRI JIA registry is to prospectively collect information on disease course, outcomes and medication adverse events among Canadian children with JIA.

The registry will:
1. Provide answers about the expected disease outcomes and the risks of medication adverse events for patients and care providers.
2. Contribute to new insights about JIA and its treatment through yearly updates of registry findings and publication of scientific papers.
3. Allow Canadian researchers to answer their own research questions about JIA.
4. Allow comparison of JIA outcomes and treatments across Canada and with other jurisdictions, in support of quality improvement initiatives

The mandate of the Knowledge Translation (KTE) committee is aimed at developing a cohesive and efficient method of developing and disseminating new research knowledge and key messages from CAPRI projects and to facilitate the application of research results to clinical practice for the purposes of improving care and health status for pediatric rheumatology patients in Canada.